Lanarkshire Mum’s Desperate Plea To Secure Life Saving Cannabis Oil

A Lanarkshire mum has advised of getting to ‘stay out of a suitcase’ in a bid to entry medicinal hashish oil for her epileptic daughter.

Full-time carer Julie Galloway, 52, was visiting household within the Netherlands when little Alexa was rushed to hospital after struggling a seizure in September 2019.

The courageous seven-year-old, from Cumbernauld, additionally has Rett Syndrome, a uncommon genetic dysfunction which impacts mind improvement and leads to extreme psychological and bodily disability.

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After seeing a physician, Alexa was prescribed medicinal hashish oil to try to deal with the sickness as they believed her present medicine wasn’t having a lot of an impact.

Julie mentioned the outcomes have been prompt. Her beloved daughter turned extra alert, made extra eye contact and was a “completely different youngster”.

Nonetheless, terrified she wouldn’t be capable to get the oil when she returned to the UK, Julie ended up staying with Alexa’s paternal grandmother within the Netherlands with the mum “dwelling out her suitcase” between July 2019 and July 2020.

Alexa spent seven months in hospital

After a 12 months away from residence, Julie finally made the troublesome determination to return to Scotland because it turned not possible to go away her home right here any longer.

Chatting with our sister title the Daily Record, she mentioned: “It was horrible. Alexa and I had a life in Scotland.

“It’s wasn’t good having to pressure an Alexa’s gran to sleep on her sofa both. I used to be dwelling out of my suitcase when my residence was mendacity empty in Scotland.”

Alexa was first identified with Rett Syndrome at 18-months-old after her mum seen she wasn’t reaching sure anticipated milestones.

Alexa was 18-months-old when she was first diagnosed with Rett Syndrome

Alexa was 18-months-old when she was first identified with Rett Syndrome

Then after taking a fall in school when she was six, Alexa started creating life-threatening epileptic seizures lasting minutes at a time.

It left determined Julie fearing every seizure “could be the one to kill her”.

Alexa’s well being battles means she has to journey all over the place with an oxygen tank, with frequent journeys to the hospital for emergency remedy.

Since arriving again within the UK in July final 12 months, Alexa continued utilizing the Noidecs 20:1 Cannabis Oil through non-public remedy.

Medicinal hashish is ready to be prescribed by docs privately in Scotland, with Julie saying she has been unable to entry it via the NHS as there ‘isn’t sufficient proof to show it was useful.’

This has left the household having to fork out round £400 per 30 days for personal remedy, regardless of being on advantages.

Julie added: “Since utilizing the oil, Alexa has actually improved.

“There’s been no extra waking up each morning to seizures, no panic seizures within the automobile and no extra hyperventilating.

“Her seizures have decreased by 60% and her weight loss plan has improved as nicely. I don’t worry her dying immediately anymore.

“She’s such a tricky wee cookie and so resilient to endure what she has whereas nonetheless with the ability to handle a smile.”

The doting mom has since arrange a charity web page in a bid to boost £5000, which might cowl Alexa’s provide of hashish oil for the subsequent 12 months.

Now Julie is asking for the Scottish Authorities to make the oil out there on the NHS in a bid to assist different kids battle their diseases.

She mentioned: “They are saying there’s no proof, however I’ve seen a discount in seizures in Alexa and so have a whole bunch of others.

“They should p
ut kids first and supply them this high quality of life. They’ve the chance to save lots of them.”

When contacted for remark, an NHS Scotland spokesperson mentioned: “We might suggest contacting Scottish Authorities for remark as we comply with nationwide steerage on the prescribing of cannabis-based medicinal merchandise.”

A Scottish Authorities spokesperson mentioned: “These are undoubtedly extraordinarily troublesome circumstances, that are distressing for sufferers and their households.

“Nonetheless, it will be inappropriate for Ministers to intervene in choices on the remedy or funding for particular person sufferers, for which we should belief clinicians and the NHS.

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